This One's For You...

...and no I am not talking about the old beer commercials for those of you old enough to remember. So this is a short one 'cuz I am one tired girl. Tonight I met with my team for the TLC show - it will be fun and scary - you fellow "Cushies" know how hard it is to show yourself off...but if it helps us and others like us then it will be worth the stage fright and pics on my part.

The good news is that during my recovery process I have lost another five pounds and am less than 165 now - down from 210ish. I'll take pics this weekend so you can see the change. And you all know how much I love taking pics of myself by the small amount on here and you will see the very few in my home. It's hard to accept the new body but this show will help me do that and help raise awareness for all my friends and family - you know who you are that do not include blood relatives.

So, they gave me a camera to tape my thoughts and feelings for the next two weeks and will probably kick my butt for not filming this but I'm in my pjs and too tired to figure that out right now. Since many of you live far away and my family is more than 300 miles away, please email me thoughts on what you think of my disease and progress to recovery and the changes you have seen in me. You can post them here or email me at my personal account...that way I can include you since many of you have not seen me since Christmas and some of you have only emailed, IM'd and spoken on the phone. I want to include as many as possible...I wish my Mom was here to have fun with me on this since she helped so much...I wish all my "cushie" friends were here to celebrate and make people understand the life of someone with a rare disease. I just hope I make you all proud!

Well, like I said, I am pooped and need to hit the sack. But please email me and I will make sure they blur out emails and personal info other than comments and even your name if you want to stay private! I understand. I just feel weird being the spokesperson on this one but like I said - this one's for you!

You all gave me a purpose in life and that is making sure we all get help and raise awareness so that one day people like us can just get help without losing as much as we have and the struggles we faced...it is because of you that I am doing this show...for nothing else. Even though I know a lot of you would kill for this makeover - I am sure I will enjoy it but this is from the bottom of my heart a thank you for giving me a purpose and fulfillment in life that I never had before this illness...now if I can get one of my biggest supporters, my boyfriend, to get on camera and tell me he is proud of me and loved me all along...maybe I can just blur his face a bit since he is shy.

So good night my dedicated readers and friends - this show is dedicated to you, my inspiration...