An Opportunity for Greater Good

Today I did something I would never usually do...I put myself in front of the camera to talk about Cushing's and my experiences. It could be used for a makeover show on a major national cable station and maybe, just maybe someone will see the possibility to help me do something greater with my life. I hate being in front of the camera but if it helps others with Cushing's and diseases make it through the hard times in life than it truly is all worth it. I'll put up pics soon since I have lost 35 - 40 of the 80 pounds I have gained. I'm almost there but I could live with this body if only I knew how to dress it and make it "me."

Anyway, I hope that they pick me to air and not for selfish reasons but because there is the possibility that I could touch at least one person and help them. Not that I would turn down a fun makeover...but I like to produce video segments not be the star. But, hey, maybe someone will see it and think I should get a grant to start an organization to help people financially with disease that can not make the ends meet or get the care they deserve. I've worked with advocacy groups before but I would love to build one that would help people emotionally and mentally as well as financially since that is what I discovered is missing to help people who experience long-term illness. Insurance runs out or jobs walk away because you have been sick for too long. Why should people who get ill be punished just for getting sick...it's not like we all asked for tumors in our heads or elsewhere for that matter. Families don't have cash to loan you and life becomes rough.

That's the hardest part is trying to put your life back together after a long disability. Employers in America are really not understanding of people who get hit by disaster. I wonder if Katrina victims experience the same thing as sick people. You lose everything and have no way to replace it. Maybe someone will see this and help make a difference in my life and others like me. I don't know that the world is ready for a program that actually helps people like us but it should be!

Anyway, it was a long day and I did my best to get us on so maybe we can get the help we need...I won't find out for a few weeks but keep your fingers crossed and maybe by then I'll have one more piece of the puzzle of my life put back together...oh, by the way I still am interviewing but people seem confused by my medical disaster and my positive attitude.

Perhaps that is why I am not getting a job - they think it is all an act or not reality. But, you do learn a lot about yourself once you have gone through an experience like Cushing's. I do want to do something greater than myself. And, there is always the possibility my disease comes back but I believe a positive attitude can get you many places in life...I'm just still waiting for it to happen career-wise. I have everyone I need and most of all my life...now if I could only pay the bills!

Keep your fingers toes and all else crossed!