A New Approach

So the doctors that were supposed to be treating me in NJ ended up ignoring my complaints of Cushing's returning. The doctor in NYC agrees that the steroids probably induced Cushing's once again. It's true I have Cushing's once again and this time we have another approach. We hope the tumor in my head is inactive for now and that there is a large amount of scar tissue.

We have immediately removed me from steroids and I have been off of them for three weeks now. The removal of the steroids should reverse the steroid-induced Cushing's. After they have been flushed from my system which could take months to years I should return to normal and can stop taking the other medications. But mind you this will take time and hard work.

So far I feel a bit better. The last three weeks have been tough and I wanted to literally kill myself and then kill someone else. It was the hardest thing to do and I have many more drugs once my blood pressure and sugars return to normal. So I am sticking with this doc and little by little and hoping it is the answer to my Christmas miracle - just a little late. I just hope I can find a way to make it happen soon enough so I can return to work.

This is not an addiction to drugs as some people misunderstand but is a chemical reaction my body had to steroids causing me to have a second bout of Cushing's. Because of Cushing's I needed pain medication for the nerve and bone damage it has done, and blood pressure medication as well as diabetes and a number of other medications like Vitamin D and Calcium etc.

For those of you who doubt the damage to my body I would love for you to try to live with my pain and having to swallow pills and monitor my blood pressure and sugar four times a day. Just try feeling like you are having a heart attack and can do nothing to help yourself. You people are unforgivable and I hope you never have to experience a rare disease and be treated the way myself and other Cushing's patients have throughout our treatment and diagnosis.

I may never be able to come off the anti-diuretic since the damage done to me during surgery is reparable and will last the rest of my life. It may have also caused some of the other problems along with Cushing's. But we are working at it and hopefully I can stay where I need to long enough to get the care I need and the cure I desperately seek.

I am going to make it and am willing to do the work...but time is of the essence for me.