Thanks for Two Things

Okay, so I missed last night's entry but I was busy chatting with my friendswho are doing anything they can to help. I was on the phone for hours last night and boy did I need it because the surgeon who allegedly didn't do my surgery called and wants to see me ASAP. I'm sure you can imagine the horror which gripped me after nearly five months of no contact. Why now? Also, I had bad news about my liver enzymes increasing as well as my ACTH and Cortisol coming back way below normal even though two weeks ago I had full-blown Cushing's Disease again. Now it looks like cyclical Cushing's. Just a short note on all of this then I'll get to the happy portion of today's entry. Anyway, I am on replacement therapy so my levels should be the same as yours on a daily basis. I got kicked back to the wonderful doctor who has stood by me for the past 15 months and has been my physician for more than seven years at this point. She is so angry with all these medical professionals she has no idea how they could enter medicine. I thank god for her everyday! She has jumped back on to save the day and has already ordered all of my tests and called hte experts at Columbia Presbytarian in NYC to get me in within a month for a consultation and treatment. Now she knows how to take action. I'm having another MRI of my head and abdomen as well as a CAT scan. I called Columbia and should be able to get in by year's end if I get my files to them as soon as possible.

Okay, now to happier things. I have to thank the one doctor who has upheld her oath to help others and do whatever it takes. I have worked with her for seven years and without her I probably would have given up months ago! She and her nurse treat me with compassion and humor as well as ensure that if others fail they pick up the pieces. I am sure she didn't imagine having this many pieces to pick up but each time she calms me, reassures me, and actually makes me laugh and determined to continue the fight. I could go on forever but you would probably get bored.

Finally I would like to thank my friends who don't pretend their life is perfect because they think I have enough to deal with. I'm still human and still have interests other than being sick. Besides I do get some pleasure knowing that life continues outside of my apartment and hospital walls. We all have our problems and issues but it is our real friends who help us through them - and how can one help if all you do is hide. I learned that lesson recently and can not tell you the difference it has made in my life. It is kinda scary because you do lose some friends by being so honest but it also allows you to make new ones who help.

Okay, off to nap before lunch...