Not Moving Forward Yet

I finally was feeling well enough yesterday to drive the mile to the hospital to get my labs done to confirm what we already know is true. They should be back by tomorrow or Monday at the latest. Then I can take those and go for my detailed testing with the specialist in Boston.

My new endo still has not gotten any paperwork from the hospital so I placed some calls. I guess a little added pressure can't hurt. We NEED those to get me in with the next specialist and get this thing out of my head. The longer it takes the longer my recovery and hopes for a normal life linger. And, the harder it will be for me to get my life back. At this point it feels hopeless some days…and then there are days like today where I won’t let it rob me of everything I have worked so hard for.

I was hoping to take psych classes part-time at the local college – only one at a time. But, it’s too late to appeal for financial aid. So I guess others with rare disease will have to wait for my certified help. I continue to chat with those going through the same struggle as I am. It feels good to help them and answers some of the questions based on what I have already gone through. I can’t wait until I am better so I can truly help others like me.

Anyway, they changed my meds and I am feeling a bit better. It it still hard to get off the couch and I have lost 14 pounds since I can’t keep any food in me still. Hey, I guess it’s one way to lose this weight because that is also on hold until I have surgery. I’ll just keep growing and growing. I have to say that is still painful and the tell-tale purple stretch marks are spreading across my breasts and abdomen.

Well I have to go lay back down for now while I continue to wait…and wait…