It's Back

So I went to the new endo yesterday who was great and not judgmental! She just nodded and immediately came to the conclusion my cortisol was high again meaning I still have Cushing's...we just have to find out where it's coming from. I had the tests from my primary care called into me last night since we did that test and low and behold I have extremely high cortisol again! Almost three times the normal amount in my blood...even when I was first diagnosed I was only a little over high.

She also thinks I have diabetes and has me testing four times a day. I think she wonders why no one would treat me for the diabetes before when it was very apparent my blood levels have been screwed up. Anyway, I now prick myself everyday. My fingers are turning purple because of my clotting disorder and Cushing's makes it worse too...now I know why teenagers are scared to do it. It's like you're a marked woman with purple fingers. But hopefully this is one thing we can treat and make me healthier before they treat me again.

I'm not sure what's next, another MRI and labs for sure. I think it will probably be another surgery or two and this time I will come out completely chemically dependant. Ugh, the thought of going back in the damn tube!

I had myself convinced that it wasn't so bad yesterday but now it is beginning to sink in that I have Cushing's. I'm trying to stay strong and know eventually I will beat this but it still sucks! It screws up all my plans to go back to work and stuff...it worries me more that I can't get my life back to normal than having Cushing's. I think. Well probably not in reality but I am scared to death now that I will truly lose everything I have worked so hard for all my life.

At least now I am being treated for the pain and headaches and stuff that went along with Cushing's so I can sort of handle my everyday life...I still don't have much energy to cook dinner and clean the house, but it gets done. Perhaps some of you wanna come help me out one day. :-)

Anyway, I making the changes with my medications and working toward fighting this thing once again. At least I felt better for a little while...now let's prep for round two!