Monday, May 02, 2005

Doctor Wars

So Friday I heard from my endo and it appears all my blood work was whacked enough to warrent surgery! Yippee! But she said I sounded kinda down so I explained that I shouldn't have to be fighting with all these docs to get fixed and see what should be fixed first. She agreed and was calling the surgeons today to get things rolling. She thought that I would hear about a surgery date today but no luck. They probably are still fighting over who should slice me first. And while it is getting on my nerves, I am also glad I am taking myself out of the doctor wars and will let them decide what happens.

The good news is that things should move fairly fast. The bad news is my blood work makes me appear, chemically speaking, like a pregnant menopausal woman who is over-producing growth hormones and becoming a giant. Hot, I know! But at least they have me figured out now and life can move on. I just wish it was going slightly faster even though as more days go by my freaked out and scared factors continue to increase.

Doctors are great people but their egos sometimes make the patient feel like they aren't as important as the docs...hello, they wouldn't have any job if it was't because I have the fortune of having two rare diseases. That and they are already talking about writing me up for a medical journal article. Which is great in the sense it will help others docs treat patients like me but right now I just wish they would schedule me a surgery date. That and who would think that a neurosurgeon and a thoracic surgeon would have to fight over who gets me first. I guess that's why my endo got out of the academic setting and now wants to do clinical work...more focus on the patient who actually needs the help than on the egos.

All I want is for them to stop, talk like humans, and fix me. It's been nine and a half months and still I'm waiting for surgery. I think it's worse than an overdue baby...because you know eventually they'll take it out soon. With me they could leave me in this cycle for months more. Not really a reality but who knows, it could turn into one while they sort the egos out. I do have to say my neurosurgeon does seem to have me in mind rather than just the medical publications he can get out of me. Maybe I should arrange a conference call like I do when I work with docs in my job so we can all get on the same page and get things moving.

Oh well, let's hope the egos go home tonight and stay there so that tomorrow the doctors call me with a date!

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