Sorry to Keep You Waiting...

To my readers, I'm sorry to have kept you waiting so long. Today has been a long day and without much sleep the past two days have become one. I'm exhausted and emotionally drained but I figured I owed you all an update...besides; the cortisol keeps me from sitting still or getting a nice little nap.

So away, I really like this doc. She listened to every rambling word I had to say and even saved my pictures for her files. She outlined the problem for me and has outlined a plan to get to a solution - wow a doc with a solution - will wonders never cease!

The problem - in the beginning of all of this I was showing signs of a ACTH producing tumor (which would be the one in my head). Not really a problem since this makes sense and is in line with the MRIs but somewhere along the line my blood tests started showing issues with my adrenals. Meaning my chemical levels changed and made it look like a problem with my adrenal glands vs. my pituitary. Then I was put on a lot of drugs to deal with the various problems all of these chemicals in my body were creating and it has once again altered my blood work...creating a problem in getting a "clean" diagnosis. As you can see this is very confusing!

Anyway, it is likely the tumor on my pituitary is causing some issues but I need to be drug free to prove it once again so I can prove that it has to be removed...

The solution - take me off the drugs, cold turkey. I need clean blood to get the results that we need to make sure that the pituitary tumor is causing all these problems and that I truly do have Cushing's.

This is going to be extremely painful but hopefully worth the pain since it will lead me to a final solution. The doc was kind enough to point out that there is an obvious problem by looking at me and by looking at my MRIs. She did indicated that she believes that the thing in my head needs to come out we just need to get things right to get to that point.

And the closing statement was key - apparently many people are out there like me going through this and we all feel like we are insane, we aren't and technically the cortisol is making us insane but really we aren't...so really even though I feel insane I'm not - get it - I'm not insane!

Yippee - there is something wrong with me and I am not insane...okay off to cut myself off the drugs, go through withdrawal and try to cope with headaches worthy of ice picks! Wish me luck!