Updates on the first three MRIs

So, as you know I have been having MRIs this past weekend and discovering new things about myself. Here is what they are looking for:

• Another picture of the tumor that was found six months ago and
• Any new tumors in my cervical and spinal cords (so far I have only had cervical and lumbar spines and return tomorrow for thoracic)
• Multiple sclerosis
• Evidence of seizures since I have been having some unexplained issues at night with sleep and problems controlling my body both awake and asleep.
• Genetic rationale for a small cavernous sinus that eventually leads to other genetic disorders.

So here is the feedback or I should say reaction so far. During my first MRI of my cervical spine the technologist and radiologist kept requesting where my last tumor was seen six months ago…it was seen in the brain but the cervical areas but occipital lobe and moving into other areas. She asked several times if I was sure and took twice as long, if not longer in this area, to determine what was going on and basically “told me that there seemed to be a masses or tumors involved in this area – NOT GOOD since it is a very hard area to operate in as well as indicative of cancer, additional brain tumors and other genetic disease. MS is not considered genetic and I have no family history of it to my knowledge. They did scan for MS and today’s person did indicate a nod when I said I don’t believe I have MS but likely a tumor. She was a bit odd and never told me how long my scans would last or where – they usually tell you which body part and how loud the noise it – it also helps when one has to itch or cough because if you do this during you can screw it all up and have to start over. I behave very well during these – surprise, surprise…lol! Any way, she sat with me for about 45 minutes after my exam, my exam was supposed to be half and hour and lasted one hour and fifteen minutes. Can you imagine going in a machine the size and look of a coffin thinking it would be a short amount of time and it lasting over double? I was quite mad as she said nothing to me about it lasting longer.

I have some side effects from the injections they give you to see the tumors better and other blood vessels and brainy things. It has not been fun to say the least and left me very tired.

She could not believe that I handle what I have been through so well and with little consistent support. She thought it was wonderful that my man and I would be moving in together and I said well I hope he still wants to once I get my reports back and she remarked that he had been this far she was sure he could handle more and obviously loved me for who I am and my great attitude. She thinks I am the perfect person to start a foundation. Me, I still have doubts but I know people need money to feed themselves, get medication, roofs and other life needs. These are things not covered by our small disability from social security and Medicare. Oh well, I guess when I get to the end of my career change book we will see but it will be this or another choice. I do think it will be this since I am already doing it without pay and love it more than when I was getting paid…besides eventually I will get paid and be able to afford my own medications.

Anyway, so far it seems I may have additional tumors in my upper spine and in my lower brain as well as some bone disease in my lower spine based on the conversations – now these are just beginning conversations and not full evaluations but not good news nonetheless.

Am I scared, yes, I think I could handle another brain surgery but a spinal surgery so close to so many nerves and my brain and paralysis – I am not so sure. But I refuse to get weak and will remain strong until I get some additional feedback. I am focusing right now on being pissed that they forgot to tell me there was a tumor in my brain six months ago and not because it was small and insignificant…heck even I could point it out ad when I did they ignored me…being angry and upset about that is easier than thinking about the possibilities of the others…

If you are a member fo my family and still supporting me, please let me know if I could have MS or if there is a history since my current recourses say NO. And like I said it is not 100 percent genetic but it is the first risk factor listed…I don’t think that is what it is…but I’m not a doc and what do I know besides I was right about the previous diagnosis’.

Tomorrow I have my fourth MRI and hopefully last for a while since the injections are giving me side effects I will not describe and a meeting with the doctor who plans to lock me up to observe me for a few days. I’ll find out more details about this tomorrow but it is basically a bunch (more than 25 – 50 ) electrodes stuck to my head while I am locked away from my friends and any TV – only docs and nurses for company…oh joy! I can’t sleep there and to test me is gonna be fun…they may also do some visual tests and others to monitor my brain waves …hey; at least I have a brain to test unlike some others I know! Haha! Ok, I have less than 6 hours of sleep and need to run…I’ll update you later tomorrow…let’s hope it does not take twice as long like the last three.

To clarify for those who are confused:

• Brain
• Cervical Spine
• Lumbar Spine
• Thoracic Spine (we will see if the previous cyst/tumor (density says it was just a couple of points away from a tumor) So anyway, we will see if the tumor was actually attached to the lungs or spine…fun!