Monday, March 28, 2005

More of Everything

More docs, more tests and more problems seem to be the theme today. I heard back from my endocrinologist and the news is okay...until she mentioned that she strongly recommends that I see a hematologist as soon as possible. Apparently the thing in my head isn't cancer and may or may not be cyclic Cushing's but we have to wait and see if my levels change again.

So I inquired for more detail on why I need to see a hematologist and she indicated I could be having a very serious problem with my bone marrow...a strange anemia that is very rare or the other option of a type of blood cancer (leukemia / lymphoma / myeloma). She was very adamant that I see one as soon as possible because my white count and plates have been very high for seven months now and it appears that it is not stressed related...or cortisol related.

The problem with my blood could be causing all these other issues so I'm not crazy and/or making any of this up - I know some of you think that I am but apparently the medical community agrees that I am not and that there is something fairly serious going on. You can't imagine open abrasions on your skin and hair falling out all around you.

Luckily I already have a hematologist for my clotting disorder so I called and they got me the first opening for Wednesday. Which means more tests and more doctors....

As you can tell, today is not the best day for me and the frustration continues to grow as I get thrown more possible diagnosis' and more severe consequences....but I'm trying the best I can to stay positive even though days like today make it harder.

Happy Monday!

0 Comments:

Post a Comment

<< Home