I'm out...

Here is a story from the NY Times this week...(NY Times)...I am so extremely sick and trying to get well right now pending surgery and other treatments.

I am sick of people thinking I am not telling the truth - I have about 10 docs and they all have a different role so I always have different answers. I have a hard enough time understanding it all - my boyfriend has been my only constant outreach and companion. So in order to focus on my well-being and health I am unplugging so the stress does not make me worse. My battle with all is over and I refuse to do it anymore.

If you actually care you can write me privately and keep it between you and I only...hopefully in a couple of weeks I will feel like writing again and be over this latest hump of extreme pain and illness that has put me in Urgent Care twice in three weeks. I am on my way again today and was up all night with all sorts of stuff pouring out of me so I am waiting for a stranger to come help me hoping I don't dump this strange bodily fluid on him/her.

I hope you read this article and gain some insight to what it is like to be a rare disease patient and actually very sick...and people all around you don't care and walk away because they are tired of it all or can't deal - whatever the excuse I don't have any as to why this is happening to ME...the old man in the story feels an awful lot like me alone and uncared for...

Well for now I am over and out...