Tuesday, November 07, 2006

A Chink in the Armor

Yesterday I found a new chink in the armor of new docs I put together to help me address my final symptoms. He was real brilliant and could not even begin to address any one my questions. Like is this a normal part of recovery, is it possible that my tumor has grown back, can I have an MRI to check, is it possible that scar tissue can causes symptoms or transient symptoms? He told me that pituitary Cushing’s does not really exist. Yeah right, since most people with Cushing’s I know have pituitary not adrenal…maybe he should speak to the support groups or actual patients since I would be his first. Great another virgin!

So, he was so incompetent that he forgot to adjust my diabetes medication because he was too busy trying to tell me pituitary tumors do not really cause problems and I had surgery for nothing in my brain. Hmm, really?

I proceeded to call my surgeon when I got home and told him my story and he laughed saying he can not believe the ignorance of doctors in New Jersey when it comes to Cushing’s. He was making some calls today and yesterday to get me to some experts in California and Oregon. Hoping to get some resolution to why I am still somewhat symptomatic. Meaning that some symptoms are here all the time and some come and go. This makes life complicated and my treatment and resolution even more fun to deal with, especially for those who are disbelievers.

But hey, that is where my fighting comes in handy right!?

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